The goal of the Data Access, Integration, and Analysis (DAIA) program is to support researchers’ access to the IHID. Through this partnership, Genome BC aims to provide researchers with the opportunity to analyze existing genomic data integrated with PHC healthcare clinical and imaging data to enable new insights that can address a clinical need and provide benefits to the BC healthcare system. Genome BC will cover the IHID costs to facilitate use of the platform and training opportunity.
The IHID can provide the following de-identified clinical and imaging data drawn from care activities at St. Paul’s Hospital and Mount St. Joseph’s Hospital in Greater Vancouver from 2017 to the present:
- 200,000+ distinct individuals’ electronic medical record (EMR) information
- 2,500,000+ radiology medical imaging exams
- Includes data from BC-wide specialty programs (cochlear implants, cystic fibrosis, etc.)
After receiving appropriate patient consent and ethics approval, the data above would be matched and linked with researcher-supplied genomic data for research project in a manner that preserves patient anonymity for individual researchers.
The IHID allows the extraction and linking of the following data types or results:
- Discrete electronic medical record (EMR) fields, including
- ICD10 disease classification codes
- Surgical interventions
- Cancer stage at time of encounter
- Laboratory specimen results
- Radiology medical imaging exams, including:
- 374,000+ projection x-ray exams
- 475,000+ Computed Tomography (CT) exams
- 110,000+ Mammography exams
- 290,000+ Magnetic Resonance (MR) exams
- 398,000+ Ultrasound exams
- Detailed radiology reports for above