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sector_ico_Health_trans Human Health

Learning in a Time of Crisis: Creating a Canadian COVID-19 Registry

  • Project Leaders: Corinne Hohl
  • Institutions: University of British Columbia (UBC)
  • Budget: $325000
  • Program/Competition: COVID-19 Rapid Response Funding Program
  • Genome Centre(s): Genome British Columbia
  • Fiscal Year: 2020
  • Status: Closed

This project established the Canadian COVID-19 Emergency Department Rapid Response Network (CCEDRRN), a national registry of patients who present to Canadian Emergency Departments (EDs) with suspected or confirmed COVID-19 disease. Importantly, this approach increases the amount of data collected from populations that are often underrepresented in studies impacting clinical management such as marginalized populations and women who are pregnant or breast feeding. To date over 136,000 patient records have been assembled and followed that were acquired from the 50 EDs participating that span eight provinces. It is the 3rd largest observational COVID-19 registry in the world according to WHO.

The data collected is used to develop clinical decision making resources that help physicians make the best possible clinical decisions for their patients and ensure the best use of available resources. For example, tools predicting the likelihood of COVID-19 positivity in persons presenting in EDs and tools predicting the value of intubation in patients are outcomes of this work. Additional studies are underway, and findings will be able to reflect the changing landscape of the pandemic. This collected data helps to characterize the burden, prognosis and resource allocation of ED COVID-19 patients in Canada, which in turn impacts resource allocation and planning. By identifying early ED risk factors and treatments associated with poor or improved outcomes, this study will support better informed clinical decision making for patients with COVID-19.